Veds symptoms. vEDS causes symptoms that can affect daily life.
Veds symptoms Vascular Ehlers-Danlos syndrome (VEDS) is a rare genetic disorder that affects the body's connective tissue. Some signs of VEDS are easy to see Every person’s experience with Vascular Ehlers-Danlos syndrome is slightly different. It is slightly higher in women, with a median of 53 years and slightly less men with a median of 49 years (1). These GI symptoms are also seen in the general population. Oct 21, 2024 · A VEDS patient might come in with symptoms such as a sudden, severe headache, chest pain, or abdominal discomfort. These symptoms often result from weakened connective tissues that support the ocular structure. Hernias were present in similar proportions of patients with vEDS and LDS; however, ventral hernias were more frequent and more likely to be postoperative in vEDS than LDS. Please use other methods of research for that and talk to your doctor We would like to show you a description here but the site won’t allow us. Download the Vascular Ehlers-Danlos Syndrome Emergency Preparedness Kit and Card here. This information is intended for people who have been recently diagnosed with vascular Ehlers-Danlos syndrome (vEDS) and their friends and relatives. Learn about Vascular Ehlers-Danlos Syndrome (vEDS) and it's signs and symptoms. Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that impact the body’s collagen structure and function. Prenatal testing is available for pregnancies that are at an increased risk of passing the COL3A1 mutation to offspring because of a known disease-causing mutation in one of the parents. Managing and monitoring Investigation of any unusual signs or symptoms because of the possibility of complications related to vEDS. It affects the body’s connective tissues and is primarily characterized by fragile blood vessels, skin, and internal organs. If you or a loved one is affected by this condition, visit NORD. EDS is a group of rare inherited (genetic) disorders that affect the connective tissue in the body. What are the common symptoms of Vascular Ehlers-Danlos Syndrome? The common symptoms of Vascular Ehlers-Danlos Syndrome (VEDS) include thin, translucent skin that is prone to bruising and tearing, easily visible veins, arterial and organ ruptures, joint dislocations, abdominal and chest pain, and a collapsed lung. In vEDS, patients do not have extreme hypermobility (Very less only of toes and fingers) instead of common facial issues. She never dreamed she’d be facing a life-threatening situation that ultimately led to a Vascular Ehlers-Danlos syndrome (VEDS) diagnosis. May 22, 2020 · Confusing VEDS with more common forms of EDS is dangerous. Characteristic arterial and intestinal fragility and generalised severe tissue friability can lead to clinical Nov 10, 2024 · Symptoms may appear anywhere on the body, including the vulva, vagina, and urinary tract, and EDS may affect hormones. Dec 11, 2018 · William T. For example, vascular EDS (vEDS) often presents with specific facial features, including large, prominent eyes, a small chin, thin lips, sunken cheeks, and translucent skin that reveals underlying veins. However, vEDs does not typically display hypermobility of the large joints and skin hyperextensibility, which are features typical of the more common forms of EDS. Connective tissue is made up of proteins that play important The VEDS Movement is a division of The Marfan Foundation that specializes in education and support related to Vascular Ehlers-Danlos syndrome. An emergency field guide for First Responders and ED Personnel on recognizing and managing life-threatening complications of Vascular Ehlers-Danlos Syndrome (VEDS). It is critical to be prepared for emergencies with VEDS. vEDS can cause a variety of symptoms in many different areas of the body, so people with vEDS may require multiple providers in different specialties to manage their care. It is caused by a gene mutation affecting a major protein, which causes weakness in vessel walls and hollow organs. Feb 8, 2024 · We presented the case of a 27-year-old male patient who presented with severe loin pain, which was initially treated as pyelonephritis but was genetically confirmed to be vEDS 2 years later. Ultimately, 18 known COL3A1 mutations and 16 novel ones were identified. g. Vascular dissection or rupture, gastrointestinal perforation, or organ Jul 23, 2025 · Symptoms can include sudden chest pain, which may feel sharp or like tightness, along with shortness of breath, rapid heart rate, and coughing. Thus, colonic Oct 28, 2024 · What is vEDS? Vascular Ehlers-Danlos syndrome (vEDS) is one of the subtypes of the Ehlers-Danlos syndromes, a group of heritable connective tissue disorders (CTD). Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and All VEDS patients need to be made aware of the signs and symptoms of a carotid-cavernous fistula and be advised to report to the closest tertiary care hospital should these signs and symptoms develop: Vascular Fragility: For vEDS patients, vascular fragility can lead to more severe VCS symptoms. Learn about symptoms, diagnosis, and management at The Cardiovascular Care Group. Aug 25, 2022 · Complications Complications depend on the types of signs and symptoms you have. 7% of pregnancies in individuals with vEDS result in maternal death, often due to arterial or uterine rupture. Sep 2, 1999 · Vascular Ehlers-Danlos syndrome (vEDS) is characterized by arterial, intestinal, and/or uterine fragility; thin, translucent skin; easy bruising; characteristic facial appearance (thin vermilion of the lips, micrognathia, narrow nose, prominent eyes); and an aged appearance to the extremities, particularly the hands. Another feature of vEDS is a family history of major vascular events like Find out more about Hypermobile Ehlers-Danlos Syndrome using our easy to navigate body map. For instance, May-Thurner Syndrome may result in more pronounced leg pain and a higher risk of blood clots in EDS patients due to their increased vascular fragility. The true prevalence of vascular Ehlers-Danlos syndrome (vEDS) is unknown, due to underdiagnosis of both symptomatic and milder forms of the disease. As a result, they are the first person in The VEDS Movement mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS). The condition is characterized by aneurysms (a bulge in an artery), rupture of the bowel, and rupture of the womb during pregnancy. Spontaneous or trauma-induced tearing of blood vessels, which can result in severe bleeding requiring emergency surgical intervention. Ehlers–Danlos syndromes (EDS) are a group of 13 genetic connective tissue disorders. May 13, 2024 · Vascular Ehlers-Danlos Syndrome (VEDS) is a rare and severe form of Ehlers-Danlos Syndrome. Vascular Ehlers-Danlos syndrome (VEDS) is a genetic condition that is caused by a change (mutation) in the gene for collagen type 3 (the COL3A1 gene). This video is about my Vascular Ehlers-Danlos Syndrome (VEDS) characteristics and my diagnosis story. We follow patients with diagnoses of VEDS in our Connective Tissue Disorder Program here at Lurie Children’s. […] Vascular Ehlers-Danlos syndrome (vEDS) is a rare inherited connective tissue disorder predominantly caused by pathogenic COL3A1 variants. Some GI related clinical concerns include hiatal hernias, postoperative hernias, gastritis, abdominal pain or distension, nausea, vomiting, GERD, constipation, evacuation disorders, pelvic floor dysfunction, and intestinal rupture, typically in the colon. The Vascular Ehlers-Danlos Syndrome Traits Signs The Vascular Ehlers-Danlos Syndrome Traits Signs Vascular Ehlers-Danlos Syndrome (vEDS) is a rare, hereditary connective tissue disorder characterized by fragile blood vessels and tissues. By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, we can charge forward and improve the outcomes for those living with VEDS. However, symptoms may appear earlier on in life, such as childhood, due to fragile blood vessels and skin. Surgery may be needed for serious problems like intestinal ruptures. Even if no symptoms are observed, the committee advises that vEDS patients be regularly screened for possible arterial diseases. Find out how hEDS is diagnosed and can be managed. In the long term I am more than happy to connect with you privately and help you get the ongoing care that you absolutely need if you hope to live a long life with this condition. Genetic counseling is an important aspect of care and generally includes discussions prior to becoming Abstract As a type of Ehlers-Danlos syndrome (EDS), vascular EDs (vEDS) is typified by a number of characteristic facial features (eg, large eyes, small chin, sunken cheeks, thin nose and lips, lobeless ears). Oct 30, 2019 · Treatment of vEDS generally aims at managing symptoms, as well as routing surveillance to help detect health problems before they become very serious. It’s usually manageable but not curable. What are the signs of Vascular Ehlers-Danlos syndrome, or VEDS? Some people have signs of Vascular Ehlers-Danlos syndrome, or VEDS, with a noticeable characteristic appearance, while others do not have any outward signs of the condition. People are often diagnosed when they have easy and frequent bruising that is not explained by other causes, spontaneous bowel perforations or arterial tears, or because other family members are afected. This is a community for people who have Vascular Ehlers Danlos Syndrome (or Ehlers Danlos Syndrome Type IV), are suspected of having vEDS, and their caretakers, friends and/or family. Gain valuable insights into this genetic disorder to empower yourself for a healthier life. Ehlers-Danlos syndrome (EDS) is a disorder that affects the body's connective tissues. Some people have characteristic facial features, thin skin, and tissue fragility May 17, 2024 · Understanding Vascular Ehlers-Danlos Syndrome (VEDS), a rare genetic disorder affecting collagen production in the body. Collagen, a vital component of connective tissue, plays a key role in providing strength and elasticity to the skin, joints, blood vessels, and internal organs. Nov 3, 2025 · Explore the critical symptoms of Ehlers-Danlos syndrome type 4 (vEDS), including vascular fragility, easy bruising, and organ rupture. VASCULAR EHLERS-DANLOS SYNDROME (VEDS)? Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. It can lead to life-threatening complications and early detection is key for preventing and managing vEDS. [1] These may be noticed at birth or in early childhood. Dissection is the number one cause of early death for Apr 11, 2021 · I'm already followed by a cardiologist, and all of my doctors already know that I have a lot of vascular symptoms, so getting an official vEDS diagnosis wouldn't even make a difference to treatment or to my risk level. Marfan, Loeys-Dietz, VEDS, Stickler, and related genetic aortic and vascular conditions bring profound personal challenges and complex scientific hurdles. Of the eight who didn’t, symptoms like lung collapses, and skin and joint problems, were indicative of vEDS. Vascular Ehlers-Danlos Syndrome (vEDS) is a rare, genetic connective tissue disorder characterized by its distinct clinical manifestations and serious health implications. It is crucial for medical professionals caring for someone with VEDS to know these differences. Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and internal Our approach to Vascular Ehlers-Danlos syndrome (VEDS) Children with vascular Ehlers-Danlos syndrome often struggle with heart problems. Clinical description May 1, 2023 · Vascular Ehlers-Danlos syndrome was diagnosed in two adults being treated for serious eye-related problems, later seen as vEDS complications. Vascular Ehlers-Danlos Syndrome Vascular Ehlers-Danlos syndrome (VEDS) is a condition that is quite variable. Pregnancy Outcomes in vEDS The reality of pregnancy with vEDS can be emotionally challenging, but understanding the risks can help with preparation and decision-making: Maternal Mortality: Approximately 5. People with VEDS are at high risk for severe injuries and internal bleeding. Recognizing Vascular Ehlers-Danlos syndrome (vEDS) is an uncommon genetic disorder that is considered to be the most severe form of Ehlers-Danlos Syndrome (EDS). Spontaneous pneumothorax can even precede the diagnosis of VEDS in some individuals. [7] Symptoms often include loose joints, joint pain, stretchy, velvety skin, and abnormal scar formation. What Is VEDS? Vascular Ehlers-Danlos syndrome (VEDS) is one of the different subtypes of Ehlers-Danlos syndrome (EDS). Vascular Ehlers Danlos syndrome (vEDS) is a rare disorder, estimated to affect between 1 in 50,000 and 1 in 200,000 people. Two years later, she shares her experience coming to terms with a VEDS diagnosis. Sep 27, 2021 · Learn about Ehlers Danlos Syndrome, including symptoms, causes, and treatments. Prevalence estimates range between 1/50 000 and 1/200 000. Myopathic EDS (mEDS) Periodontal EDS (pEDS) Spondylodysplastic EDS (spEDS) Vascular EDS (vEDS) #TogetherWeDazzle Sign up to The Ehlers-Danlos Society mailing list Click here to sign up. [1][4] The existing Nov 1, 2024 · Maia Fleener wanted to get ready for living solo at college. Sep 25, 2025 · Ehlers-Danlos syndrome (EDS) is a connective tissue disorder that causes joint hypermobility, skin hyperextensibility, and tissue fragility. FAQ What are the symptoms of EDS in the eyes? Common symptoms of EDS in the eyes include blurry vision, dry eyes, excessive tearing, double vision, light sensitivity, and occasional eye twitching. Summary There are 13 different types of EDS, but they do have some clinical features in common. In retrospect, many of the patient's seemingly non-specific clinical symptoms could be explained by his diagnosis. Rare Disease 360, in partnership with The Marfan Foundation, spoke with Hal Dietz, MD, a cardiologist and geneticist at Johns Hopkins University, about the importance of educating primary care physicians and emergency department physicians on the signs and symptoms of VEDS. What can vEDS do to your heart? Vascular EDS (vEDS) affects the cardiovascular system by weakening blood vessels, increasing the risk of: Arterial rupture or aneurysm. , large eyes, small chin Oct 24, 2022 · Among them, 22 had a family history of vEDS-relevant symptoms, and 27 met at least one major criterion for the disease. vEDS leads to connective tissue fragility that can impact the blood vessels and organs. After the analysis, the patient understood that the symptoms were probably due to vEDS. I don't have vEDS, but these symptoms were enough to make him want to rule out vEDS just to be safe. These can include joint hypermobility, stretchy skin and tissue fragility. Early recognition and understanding of its traits are crucial for managing the syndrome effectively, as outlined in the Vascular EDS resources. Severe complications, such as vascular dissection or rupture, GI perforation, or organ rupture are the presenting signs in most adults with vEDS. [3] Complications may include aortic dissection, joint dislocations, scoliosis, chronic pain, or early osteoarthritis. How often does Vascular Ehlers-Danlos syndrome, or VEDS, occur spontaneously? About half of people with Vascular Ehlers-Danlos syndrome inherited the COL3A1 mutation from an affected parent. Andrews, MD, FACP, Chief Medical Officer of Acer Therapeutics discusses his company's focus on Vascular Ehlers-Danlos Syndrome (vEDS), an inherited connective tissue disorder that is caused by defects in a protein called collagen. The patient Description Vascular Ehlers-Danlos Syndrome (vEDS) is a rare, inherited disorder that primarily affects the blood vessels. First Responders Quick Guide Vascular EDS is a rare, life threatening condition that causes fragile tissues and presents with arterial dissection or rupture, bowel rupture, and uterine rupture at the end of pregnancy. Jul 10, 2021 · Yes, you may have EDS without hypermobility, especially in Vascular Ehlers-Danlos Syndrome. Jul 1, 2024 · Find everything you need to know about Vascular Ehlers-Danlos Syndrome (VEDS) including doctors, latest advances, and ongoing clinical trials. Individuals with vEDS are at high risk for spontaneous rupture of blood vessels, intestines, or other organs, often without prior warning. Vascular Ehlers-Danlos syndrome (vEDS) is a form of Ehlers-Danlos syndrome (EDS) that is distinguished by a variety of distinctive face characteristics (e. It can cause arterial rupture, joint dislocation, lung collapse, uterine rupture, and gastrointestinal bleeding, among other symptoms. Learn about treatment options available to help manage and improve quality of life. In the past I have had two big breakdowns with my mental health which brought me to the hospital for some stays and many emergency room visit for suicidal trueI have vEDS. This study describes the formation of the vEDS Research Collaborative and methods used for stakeholder engagement. We would like to show you a description here but the site won’t allow us. There is a high number of gynaecological complaints amongst biological females with Ehlers-Danlos spectrum syndromes 1 . Unlike other EDS subtypes primarily characterized by joint hypermobility and skin elasticity, vEDS is distinguished by its impact on the vascular system, posing a significant risk of life-threatening complications. This blog post aims to provide comprehensive information on vEDS, covering its signs and symptoms, causes, inheritance patterns, diagnosis, management, and Risk of perforation during endoscopic procedures are higher in individuals with VEDS. The most common gynaecological complaints in EDS include: Heavy periods (menorrhagia) 1. Jul 16, 2025 · A clinical overview of the connective tissue disorder, Ehlers-Danlos syndrome (vascular, Type 4; EDS4); with illustrations, references, and symptoms. However, there is a very wide range of life expectancy of about 10-80 years (3). Vascular EDS (vEDS): This is a more severe subtype of EDS. People are often diagnosed when they have easy and frequent bruising that is not explained by other causes, a spontaneous bowel, or arterial tears, or because other family members are affected. The current life expectancy for patients with vEDS is a median survival of 51 years. For those of y’all with vEDS, what sort of signs and symptoms do you or your affected family have? My neurologist has referred me for EDS testing… Apr 24, 2025 · The most common types are hypermobile EDS (hEDS), classical EDS (cEDS), and vascular EDS (vEDS), each with distinct symptoms of EDS. Vascular Ehlers-Danlos Syndrome (vEDS) is a rare and severe subtype of Ehlers-Danlos Syndrome (EDS), a group of inherited disorders affecting connective tissue. Some may have Nov 22, 2024 · A 25-year-old woman was diagnosed with vEDS after six years of symptoms including bowel perforations and aneurysms, a case study reported. People who have vascular Ehlers-Danlos syndrome are at risk of often fatal ruptures of major blood vessels. Navigate the body map to learn more about the condition. vEDS or hEDS, your risk level is dependent on the severity of your affected systems. Some people have characteristic facial features, thin skin, and tissue fragility What are the symptoms of EDS in the face? The facial symptoms of Ehlers-Danlos Syndrome vary by subtype. Individuals with VEDS may also experience chronic pain, fatigue, and muscle October is Vascular Ehlers-Danlos Syndrome (VEDS) Action Month. Vascular Ehlers-Danlos syndrome (VEDS) is a genetic condition that makes the arteries and hollow organs prone to tear, due to a mutation in the COL3A1 gene. Nov 18, 2022 · The patient was suspected of having vEDS; however, the onset at old age and good clinical course presentation are atypical for vEDS. Apr 10, 2022 · Vascular Ehlers-Danlos syndrome is a genetic disorder that can cause severe bleeding and internal injuries. Question: October is Vascular Ehlers-Danlos Syndrome Diagnosis of Vascular Ehlers-Danlos syndrome (VEDS) is based on careful assessment of medical and family history, physical examination, and genetic testing. When you receive a new diagnosis, this can be a time of great stress, anxiety and confusion. Oct 24, 2018 · Specifically, the committee recommends that patients be able to identify the signs and symptoms of an arterial dissection so they know when to seek immediate medical care. Common signs include easy bruising, joint issues, and serious complications like organ rupture. Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and internal Jul 30, 2020 · VEDS information, news, and communityI want to put my story out there for people to read. This protein is crucial because it can be found all over the human body. Symptoms of emergencies associated with Vascular Ehlers-Danlos Syndrome, such as arterial dissection, rupture, bowel perforation and lung collapse. Vascular Ehlers-Danlos Syndrome is a rare and severe form of Ehlers-Danlos Syndrome, affecting the connective tissues that provide structure and strength to the body's blood vessels and organs. Apr 4, 2024 · Explore the complexities of Ehlers-Danlos Syndrome (EDS) – from its array of symptoms and underlying causes to effective treatments and proactive management strategies. It is characterized by fragile blood vessels that are prone to rupture, leading to serious health complications. […] Oct 11, 2025 · What are the signs? What are the signs of Vascular Ehlers-Danlos syndrome, or VEDS? Some people have signs of Vascular Ehlers-Danlos syndrome, or VEDS, with a noticeable characteristic appearance, while others do not have any outward signs of the condition. Read about symptoms, diagnosis, management, genetic factors and more. Consequently, individuals with EDS often experience symptoms such as joint hypermobility, skin What is Vascular Ehlers-Danlos Syndrome (vEDS)? Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. I have Vascular Ehlers Danlos Syndrome and Complex Post Traumatic Stress Disorder among a list of other medical issues that affect my daily life. It arises from mutations in the COL3A1 gene, which encodes type III collagen—a vital component of blood vessel walls, skin, and internal organs. The others have a spontaneous disease-causing mutation (called a de novo mutation) that occurred in either the egg or the sperm that gave rise to the pregnancy. This is a remake of an older video :) VASCULAR EHLERS-DANLOS SYNDROME (VEDS)? Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. VEDS is a lifelong disease, but the complications are often treatable. So, when her family was making a move from one home to another in 2021, she volunteered to stay alone in their empty new house. This condition is typically caused by mutations in the COL3A1 Treatment and management recommendations for those with Vascular Ehlers-Danlos Syndrome, or VEDS, including circumstances to avoid and medications. Sep 18, 2024 · After learning much more about VEDS following her child’s passing, Jenny said there were a few small signs of VEDS present: some typical VEDS facial features – most noticeable in Natalie’s youngest years; easy bruising – which doctors had chalked up to usual childhood playground injuries when Jenny asked; and gastrointestinal issues. This article compares the main signs and symptoms of vEDS and hEDS. Arterial Dissection & Rupture Symptoms: Sudden onset pain (in chest, abdomen, back, head, or neck); nausea, shortness of breath, fainting, loss of pulse, abnormal heart rhythm, tingling, numbness, paralysis, stroke-like symptoms (such as weakness, vision changes, or altered mental status or speech difficulty), rapid swelling of area. For example, overly flexible joints can result in joint dislocations and early-onset arthritis. Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Mar 23, 2021 · What are Fibromuscular Dysplasia (FMD) and Vascular Ehlers-Danlos Syndrome (VEDS), and how are they each diagnosed? Fibromuscular Dysplasia Fibromuscular Dysplasia, commonly called FMD, is a disease that causes one or more arteries in the body to have abnormal cell development in the artery wall. Learn about diagnosis and management for this serious genetic condition. If any surgery or invasive procedures are being considered, the surgeon must be made aware of the diagnosis and should be encouraged to seek specialist advice. Vascular Ehlers-Danlos syndrome (vEDS) is a rare, syndromic, heritable condition with life-threatening complications that include aortic and arterial aneurysms, dissection, and rupture. Share your stories, struggles, successes, and any vEDS related information here! This is not the place to ask whether or not you have vEDS. In the absence of a known diagnosis, these symptoms can be attributed to common ailments like migraines, heartburn, or indigestion. The main cause of this disease is the mutation in the COL3A1 gene, which disturbs the proper production of type III collagen. Find out about the symptoms, causes and treatments. A Vascular Ehlers-Danlos Syndrome (VEDS) pregnancy should be followed in a high-risk obstetric program. Vascular EDS is a life-threatening disorder associated with fragility of blood vessel and hollow organs. At Stanford Medicine Children’s Health, we collaborate closely with our renowned heart specialists at Betty Irene Moore Children’s Heart Center. Authoritative facts from DermNet New Zealand. Gastrointestinal symptoms were frequently reported in both disorders and largely similar, although altered bowel function was more prevalent in LDS patients. What color are Ehlers-Danlos eyes? Ehlers–Danlos syndrome, EDS, Cutis hyperelastica dermatorrhexis, Dystrophia mesodermalis congenita, India rubber skin, Hereditary collagen dysplasia, Cutis elastica, Cutis hyperelastica, Danios disease, Fibrodysplasia elastica generalisata, Meekeren-Ehlers-Danlos syndrome, Dermatorrhexis with dermatochalasis and arthrochalasis. Fragile skin may develop prominent scarring. In the short term, you need to go to the emergency department if you have been told you have a dissection and your symptoms are being ignored. Some of the things that made my geneticist test me for vEDS were: hypermobility of the small joints (fingers, toes), doughy but not very stretchy skin, translucent skin with many visible veins (including on my chest). Jan 24, 2025 · More than half of children with vascular Ehlers-Danlos syndrome (vEDS) were diagnosed as part of familial genetic testing, per a study. Distinctive Traits and Early Diagnosis Individuals with vEDS often exhibit Learn about Vascular Ehlers-Danlos Syndrome (VEDS), how it affects the body and who is affected from The VEDS Movement, a division of The Marfan Foundation. Thus, we proceeded with the verification of the pathogenicity of the gene mutation identified in this case after obtaining an informed consent from the patient. Find everything you need to know about Vascular Ehlers-Danlos Syndrome (VEDS) including doctors, latest advances, and ongoing clinical trials. The type of COL3A1 mutation you have often effects the severity of your disease, your symptoms and your life expectancy VASCULAR EHLERS-DANLOS SYNDROME Vascular Ehlers-Danlos syndrome (vEDS) is an inherited condition that is quite variable. vEDS causes symptoms that can affect daily life. It is generally considered the most severe form of Ehlers-Danlos syndrome (EDS). Our skilled pediatric heart surgeons are sometimes the only ones in the world who can perform a complex heart Oct 19, 2020 · Megan was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in 2018. We hold space for these realities as we drive research, foster collaboration, and provide support—working together toward better care, better outcomes, and brighter futures. As a result, areas of narrowing (called stenosis), aneurysms, or tears (called dissections) may 4 days ago · Ehlers-Danlos syndrome (EDS) is a heterogeneous group of inherited connective tissue disorders characterized by hyperelastic skin, hypermobile joints, and vascular and tissue fragility October is VEDS Action Month! Join The VEDS Movement—share your story, rock awareness apparel, and access life-saving resources for Vascular Ehlers-Danlos syndrome. ffep poikim hazsbd nxwv wwbuxpy nafd lwyuw xkm vma rfjytvb aaghin nrvf czecdvl vld rjiuzc