Eds vascular symptoms EDS refers to a group of connective tissue disorders with genetic mutations that affect collagen structure and function. That means people with this condition bruise easily and have a high risk of dangerous bleeding from internal injuries. Introduction There is growing recognition of a link between autonomic nervous system dysfunction and Ehlers-Danlos syndrome—hypermobile type (hEDS). About Vascular Ehlers-Danlos syndrome As with other connective tissue disorders, Ehlers-Danlos syndrome involves a mutated gene that affects proteins that make up connective tissue in your child’s body. In Check your child online and learn about Ehlers-Danlos Syndrome, including its signs, symptoms, diagnosis, and valuable information. Classical EDS (cEDS) and vascular EDS (vEDS) are much Ehlers-Danlos Syndrome (EDS) refers to a group of disorders that affect the body’s connective tissue, including skin, tendons, ligaments and blood vessel walls. Morissette et al. Common signs of dysautonomia include: Tachycardia (fast heart rate) Hypotension (low blood pressure) Dizziness/lightheadedness Gastrointestinal dysmotility (problems moving food through the digestive system Aug 10, 2022 · Ehlers-Danlos syndrome is a group of inherited connective tissue disorders that primarily affects the skin, joints, and blood vessel walls1 but can affect every organ system and result in significant morbidity and mortality. For most types, such as hypermobile EDS (hEDS) and classical EDS (cEDS), life expectancy is generally normal, with patients facing chronic symptoms like pain, joint instability, and skin fragility rather than life-threatening complications. hEDS accounts for about 90% of EDS cases and is thought to affect at least 1 in 3,100-5,000 people. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs VASCULAR EHLERS-DANLOS SYNDROME (VEDS)? Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. EDS impacts multiple organ systems, often causing chronic pain, fatigue, and potentially life-threatening vascular complications Ehlers-Danlos syndrome, or EDS, affects the body’s tissues and can occur in different forms. This article compares the main signs and symptoms of vEDS and hEDS. Among the 13 recognized subtypes, Classical EDS (cEDS), Hypermobile EDS (hEDS), and Vascular EDS (vEDS) are the most commonly encountered in pregnancy. Characterized by articular hypermobility, skin exten-sibility and tissue fragility, individuals with EDS have a defect in their connec-tive tissue. Individuals with vEDS are at high risk for spontaneous rupture of blood vessels, intestines, or other organs, often without prior warning. Characteristic Physical Features Each type of EDS has a different prevalence in the population. It commonly affects your skin and joints. While EDS is commonly associated with joint hypermobility, skin fragility, and chronic pain, it also significantly affects the eyes. . Ehlers-Danlos syndrome (EDS) is a disorder that affects the body's connective tissues. It stems from a mutation in the COL3A1 gene, which produces type III collagen. Many people with EDS or HSD also have a type of dysautonomia. Find out more about Hypermobile Ehlers-Danlos Syndrome using our easy to navigate body map. Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues. The inherent joint hypermobility in Ehlers-Danlos syndrome May 3, 2021 · Vascular EDS (vEDS) is an uncommon type of EDS that is often regarded as the most dangerous. Vascular Ehlers-Danlos syndrome (VEDS) is a genetic condition that is caused by a change (mutation) in the gene for collagen type 3 (the COL3A1 gene). It is the hypermobile type. Sep 11, 2025 · Ehlers-Danlos syndrome is a group of genetic disorders that affect the connective tissues and cause symptoms such as stretchy skin and loose joints. The Ehlers-Danlos Syndrome Symptoms Checklist Guide Vascular symptoms are particularly associated with the vascular subtype of EDS. Learn about genetic implications and treatment options. Other forms include the classic and vascular forms. A recent study showed that autonomic symptoms and gastrointestinal symptoms are the two areas most likely to have an impact on the quality of life for EDS sufferers (hypermobile, classical and vascular types). What are the symptoms found in those affected by Vascular Ehlers-Danlos syndrome, or VEDS? The following are symptoms found in people with Vascular Ehlers-Danlos Syndrome (VEDS): Cardiovascular and arterial characteristics There is no increased risk of valvular or structural cardiac defects. While musculoskeletal symptoms often dominate clinical attention, gastrointestinal (GI) issues are among the most common—and most under-recognized—manifestations of EDS Disease Overview Ehlers-Danlos syndrome type IV, also known as the vascular type of Ehlers-Danlos syndrome (EDS), is an inherited connective tissue disorder defined by characteristic facial features (acrogeria) in most patients, translucent skin with highly visible subcutaneous vessels on the trunk and lower back, easy bruising, and severe arterial, digestive and uterine complications, which Abstract Ehlers-Danlos syndrome type IV, the vascular type of Ehlers-Danlos syndromes (EDS), is an inherited connective tissue disorder defined by characteristic facial features (acrogeria) in most patients, translucent skin with highly visible subcutaneous vessels on the trunk and lower back, easy bruising, and severe arterial, digestive and uterine complications, which are rarely, if at all Learn about Vascular Ehlers-Danlos Syndrome (VEDS), how it affects the body and who is affected from The VEDS Movement, a division of The Marfan Foundation. The symptoms listed here may not affect everyone with cvEDS, and people with cvEDS may have other symptoms that are not listed on this page. They sometimes also have fragile, stretchy skin. [3] Complications may include aortic dissection, joint dislocations, scoliosis, chronic pain, or early osteoarthritis. Dec 25, 2018 · Learn in-depth information on Vascular Ehlers-Danlos Syndrome, its causes, symptoms, diagnosis, complications, treatment, prevention, and prognosis. hEDS is currently classified as a rare disorder, but the true prevalence is not known and may be underestimated. There’s no cure, but your healthcare provider will help you find treatments to manage the symptoms and prevent dangerous complications. Ehlers-Danlos Syndrome (EDS) is one of the most complex conditions affecting the human body because EDS impacts almost every system. Ehlers–Danlos syndromes (EDS) are a group of 13 genetic connective tissue disorders. Read about symptoms, diagnosis, management, genetic factors and more. Written by genetic counsellors from the UK's only clinical genetics service specialising in the Ehlers-Danlos syndromes. The vascular subtype of EDS can lead to arterial You could win an amazing prize pack, courtesy of Rebecca Yarros! Rebecca is a #1 New York Times Bestselling Author, and her Fourth Wing fantasy book series follows the story of Violet Sorrengail, who has Ehlers-Danlos syndrome (EDS), a diagnosis Rebecca shares. With vascular Ehlers-Danlos syndrome, this protein is collagen III, and the specific gene is COL3A1. Vascular Ehlers-Danlos syndrome (VEDS) is one of the different subtypes of Ehlers-Danlos syndrome (EDS). These defects affect the soft connective tissues resulting in abnormalities in the skin, joints, hollow organs, and blood vessels. Many symptoms of autonomic dysfunction have been observed in hEDS, including heart and blood vessel (cardiovascular) issues, pupil, bladder, sweating dysfunction, and digestive system problems. Understand Vascular EDS or Ehlers-Danlos Syndrome: symptoms, management, and support resources. Abnormalities in connective tissues cause the signs and symptoms of EDS, which vary from mildly loose joints or hypermobile joints to life-threatening complications. Two years later, she shares her experience coming to terms with a VEDS diagnosis. Vascular EDS is not as common as hypermobile EDS, but important to recognize because of vascular complications. Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and internal Accurate diagnosis often relies on genetic testing and a comprehensive clinical evaluation to differentiate between these similar disorders. Oct 30, 2019 · Vascular EDS Last updated Jan. Vascular Ehlers-Danlos Syndrome is a rare and severe form of Ehlers-Danlos Syndrome, affecting the connective tissues that provide structure and strength to the body's blood vessels and organs. Explore symptoms, inheritance, genetics of this condition. It is caused by a gene mutation affecting a major protein, which causes weakness in vessel walls and hollow organs. This is the material that provides strength and structure to: Skin Bone Blood vessels Internal organs The variant collagen leads to the symptoms associated with EDS. Consequently, individuals with EDS often experience symptoms such as joint hypermobility, skin Sep 7, 2025 · Ehlers-Danlos syndrome is a group of genetic connective tissue disorders classified in 13 types. People are often diagnosed when they have easy and frequent bruising that is not explained by other causes, spontaneous bowel perforations or arterial tears, or because other family members are afected. Managing pregnancy in individuals with EDS requires careful Feb 23, 2016 · Vascular Ehlers-Danlos syndrome (EDS) is a relatively rare genetic syndrome that occurs owing to disorders in the metabolism of fibrillary collagen. These include: Neurological Symptoms Nov 6, 2024 · There are at least 13 types of EDS. Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and Some labs offer an “Ehlers-Danlos syndrome panel” or “connective tissue disorder panel” that includes many of the genes known to cause types of EDS and other heritable connective tissue disorders. Typical clinical manifestations are skin hyperelasticity, hypermobility of joints, the fragility of blood vessels, and atrophic scarring. Find out how hEDS is diagnosed and can be managed. Individuals with VEDS may also experience chronic pain, fatigue, and muscle What Is Vascular Ehlers-Danlos Syndrome? Ehlers-Danlos syndrome (EDS) is a heterogeneous group of inherited con-nective tissue disorders. Hypermobile EDS (hEDS) is the most common type of EDS by far. Saperstein has diagnosed and treated over 500 patients with EDS. Connective tissue holds all the body’s cells, organs, and tissue together. Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and internal organs. These connective tissues provide strength and elasticity to other parts of the body. In some forms of the GI Issues in EDS: A Comprehensive Guide I. Children who have EDS typically have overly flexible joints. Oct 31, 2024 · Living with Ehlers-Danlos syndrome (EDS), especially the hypermobile type (hEDS), can present a host of symptoms that often go undiagnosed in childhood. Apr 7, 2025 · Ehlers-Danlos syndrome (EDS) is a group of disorders that affect the connective tissues that support the skin, bones, blood vessels, and many other organs and tissues. Sep 25, 2025 · Vascular Ehlers-Danlos syndrome (vEDS) is a serious form of EDS that causes fragile blood vessels that are more prone to tearing and rupturing, which can be life-threatening. This complexity arises primarily from the pervasive role of connective tissues, which provide structure and support to skin, blood vessels, organs, and joints. Vascular Ehlers-Danlos syndrome (VEDS) is a genetic condition that makes the arteries and hollow organs prone to tear, due to a mutation in the COL3A1 gene. Part 1 of this series focused on challenges and developments in the diagnosis of Ehlers-Danlos syndrome (EDS). Introduction Ehlers-Danlos Syndrome (EDS) is a group of heritable connective tissue disorders characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Ehlers-Danlos Syndromes (EDS) are a group of heritable connective tissue disorders, characterized by a variety of symptoms due to the widespread nature of connective tissue in the body. A variety of gene variations cause problems with collagen. There are 13 types, one of which is the vascular type (There is an explanation at the bottom of the page). This protein provides strength and elasticity to blood vessels and organs. Symptoms of emergencies associated with Vascular Ehlers-Danlos Syndrome, such as arterial dissection, rupture, bowel perforation and lung collapse. Dysautonomia, also known as autonomic dysfunction, is a group of disorders that affect the autonomic nervous system (ANS). Ehlers-Danlos Syndrome (EDS) Ehlers-Danlos syndrome (EDS) is a genetic condition that weakens your body’s connective tissue. Vascular EDS is usually caused by a change in the COL3A1 gene. Vascular Ehlers-Danlos syndrome (vEDS) is an inherited condition that is quite variable. Learn more about types of EDS and treatment from Baptist Health. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Oct 8, 2024 · Ehlers Danlos syndrome (EDS) is a rare condition affecting connective tissue that supports skin, joints, blood vessels, and internal organs. Managing and monitoring The symptoms of Ehlers-Danlos Syndrome can vary from person to person, but common symptoms include joint hypermobility, chronic joint pain, skin elasticity and fragility, easy bruising, fatigue, gastrointestinal issues, vascular problems, and other symptoms affecting various parts of the body. Vascular Ehlers-Danlos syndrome can cause the walls of blood vessels, the intestines, or the uterus to rupture. Learn about diagnosis, symptoms and treatment from Froedtert & MCW specialists. Vascular Ehlers-Danlos Syndrome, or VEDS, is a genetic condition that affects the body’s connective tissue. These include vascular events, described in detail below, and rupture of hollow organs such as bowel and the uterus (in pregnant women). These can include joint hypermobility, stretchy skin and tissue fragility. Usually, this type of Ehlers-Danlos syndrome is diagnosed either by a geneticist familiar with this type, or in the clinic using what What is Ehlers-Danlos syndrome? It is a syndrome with three symptoms: skin hyperextension (abnormally stretched when pinched), joint hypermobility, and connective tissue fragility (tissue tears or swells quickly). Vascular EDS is generally caused by a Dec 18, 2023 · Ehlers-Danlos syndrome (EDS) affects the body's connective tissues. A rupture of any of these larger blood vessels can be fatal. Oct 19, 2020 · Megan was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in 2018. There is an increased risk of coronary artery dissection, and as a result, myocardial infarction (heart Vascular EDS can be very variable with regard to onset and types of symptoms even within the same family. Ehlers-Danlos syndrome (EDS) id a rare genetic disorder affecting connective tissue. , COL5A1 or COL5A2 mutations Sep 1, 2024 · Subtype: Some subtypes of Ehlers-Danlos Syndrome (EDS), such as vascular EDS, carry a higher risk of serious complications, including aortic aneurysm and rupture. There are 13 types of it, and we're here to help manage pain. Vascular Ehlers-Danlos Syndrome Vascular Ehlers-Danlos syndrome (VEDS) is a condition that is quite variable. Learn More. [1] These may be noticed at birth or in early childhood. The best way to get a diagnosis of Ehlers-Danlos syndrome is to see a clinical geneticist, but first, a comprehensive clinical evaluation and full medical history is required. Diagnosis involves recognising symptoms and genetic testing. 27, 2022, by Marisa Wexler, MS Fact-checked by José Lopes, PhD Ehlers-Danlos syndrome (EDS) is the name given to a group of related genetic diseases characterized by weakness in the connective tissue that makes up joints and holds tissues together. Ehlers-Danlos syndrome is a group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. EDS affects approximately 1 in 5,000 births and can be discovered at various ages depending on the symptoms and signs that prompt evaluation and diagnosis. Apr 10, 2022 · Vascular Ehlers-Danlos syndrome affects how strong and durable certain tissues are in a person’s body, especially the arteries and organs. Common symptoms incorporate thin, transparent skin; bruising; specified facial appearance; and fragile arteries, muscles, and inside organs. What are the visual symptoms of EDS? Visual symptoms in Ehlers-Danlos Syndrome may include visible bruising, especially in vascular EDS, where the skin can be so thin that underlying veins are visible. Español - Criterios Diagnósticos para el Síndrome de Ehlers-Danlos Hiperlaxo (SEDh) #TogetherWeDazzle Follow us on social media. Click the button to find Nov 17, 2025 · Credit: Getty Images In part 2 of this series on Ehlers-Danlos syndrome (EDS), we spoke with Brittany Goss, DO, for an in-depth look at treatment considerations among patients with EDS. Here are 23 signs that might reveal a childhood spent adapting to life with EDS. ⁠ Rebecca recently collaborated with the Colorado Avalanche ice hockey team with a special edition jersey. Navigate the body map to learn more about the condition. An overview of kyphoscoliotic Ehlers-Danlos syndrome - its symptoms, diagnosis and cause explained. Collagen, a vital component of connective tissue, plays a key role in providing strength and elasticity to the skin, joints, blood vessels, and internal organs. Nov 6, 2024 · Ehlers-Danlos syndrome (EDS) is a group of inherited disorders marked by extremely loose joints, very stretchy (hyperelastic) skin that bruises easily, and easily damaged blood vessels. It is caused by a genetic abnormality mainly related to collagen. Find out what causes this condition and how it's treated. Diagnosis of Vascular Ehlers-Danlos syndrome (VEDS) is based on careful assessment of medical and family history, physical examination, and genetic testing. The Ehlers-Danlos syndromes (EDS) are currently classified in a recognized system of thirteen subtypes. It is viewed as the most extreme type of Ehlers-Danlos disorder (EDS). Proper Cardiovascular manifestations of vascular EDS and follow-up Dr Michael Frank, MD National Referral Centre for rare vascular diseases, Hôpital Européen Georges Pompidou, AP-HP, Paris, France Chair of the MSA-WG of vascERN Apr 15, 2025 · Here, I focus predominantly on vascular EDS (EDSv) by discussing its prevalence, the specific inheritance pattern, associated genes and affected proteins, features that characterize it, how it can affect the cardiovascular system, and ultimately, the treatment of its symptoms. There are 13 different types of EDS with distinct clinical signs. vEDS is confirmed only Vascular Ehlers Danlos syndrome (vEDS) is a rare disorder, estimated to affect between 1 in 50,000 and 1 in 200,000 people. Some rare types of EDS are characterised by cardiovascular problems – the vascular type carries a risk of arterial rupture at a young age, and in cardiac-valvular EDS there are severe progressive problems of the aortic and mitral valves. Treatment and management recommendations for those with Vascular Ehlers-Danlos Syndrome, or VEDS, including circumstances to avoid and medications. He and his team at the Center provide care for the numerous complications of EDS: joint pain, headaches, POTS, GI problems, and mast cell activation syndrome. Learn more about what cause EDS, symptoms it presents with, and how it Jun 24, 2025 · Ehlers-Danlos syndrome (EDS) is a heterogeneous group of connective tissue disorders caused by abnormal collagen, which can exhibit different clinical phenotypes. Ehlers-Danlos Syndrome (EDS) is a group of genetic connective tissue disorders that impact the structural integrity of collagen throughout the body. Doctors can also request testing of specific genes based on the signs and symptoms a person has. Due to this genetic alteration, individuals with VEDS have fragile tissues prone to tearing. A more severe form of the disorder Jul 16, 2025 · A clinical overview of the connective tissue disorder, Ehlers-Danlos syndrome (vascular, Type 4; EDS4); with illustrations, references, and symptoms. Find out about the symptoms, causes and treatments. Hypermobility Ehlers-Danlos ‍ Ehlers-Danlos Syndrome (EDS) is a group of hereditary connective tissue disorders characterized by joint hypermobility, skin fragility, and varying degrees of tissue fragility. It affects blood vessels and internal organs, causing them to rupture and cause life-threatening bleeding. What are the common symptoms of Vascular Ehlers-Danlos Syndrome? The common symptoms of Vascular Ehlers-Danlos Syndrome (VEDS) include thin, translucent skin that is prone to bruising and tearing, easily visible veins, arterial and organ ruptures, joint dislocations, abdominal and chest pain, and a collapsed lung. Jul 1, 2024 · Vascular Ehlers-Danlos syndrome is a more severe form of Ehlers-Danlos syndrome, which is a genetic disorder that affects the connective tissues, such as the skin, blood vessel walls, and joints. People who have Ehlers-Danlos syndrome usually […] Vascular EDS and Systemic Inflammation Though genetically distinct from hEDS, vascular EDS (vEDS) offers additional insight into the role of inflammation in EDS more broadly. Ehlers-Danlos Syndrome is a group of connective tissue disorders that should carry weight for ophthalmologists, especially when planning surgery. Making a diagnosis of vascular EDS. Extraordinary Flexibility: You might have amazed others with your ability to perform “party tricks” with hypermobile joints, like bending your fingers 4 days ago · Ehlers-Danlos syndrome (EDS) is a heterogeneous group of inherited connective tissue disorders characterized by hyperelastic skin, hypermobile joints, and vascular and other tissue fragility the 2017 classification describes 13 distinct EDS subtypes (Malfait, 2017) inheritance pattern varies by EDS subtype mutations in at least 20 genes have been identified (e. Causes Vascular Ehlers-Danlos Syndrome (vEDS) is a rare and severe subtype of Ehlers-Danlos Syndrome (EDS), a group of inherited disorders affecting connective tissue. Many people who do not have vascular EDS can have similar features as many are common in the general population. The age at which Ehlers-Danlos syndrome (EDS) symptoms appear varies depending on the subtype of EDS and the symptoms they suffer from, as EDS will present differently for each patient. Aug 25, 2022 · Vascular Ehlers-Danlos syndrome can weaken your heart's largest artery (aorta), as well as the arteries to other regions of your body. We follow patients with diagnoses of VEDS in our Connective Tissue Disorder Program here at Lurie Children’s. Learn about the symptoms, diagnosis, and treatment. Impact of Apr 9, 2024 · Ehlers-Danlos syndrome - a genetic disorder that causes unusual flexibility and thin skin, is known to weaken the connective tissues, leading to weak joints, blood vessels and organs. Ehlers-Danlos syndrome Type III is the most common. It can affect the joints, blood vessel walls and skin and lead to symptoms like loose joints and thin skin. It is generally considered the most severe form of Ehlers-Danlos syndrome (EDS). People are often diagnosed when they have easy and frequent bruising that is not explained by other causes, a spontaneous bowel, or arterial tears, or because other family members are affected. [7] Symptoms often include loose joints, joint pain, stretchy, velvety skin, and abnormal scar formation. In the more common hypermobile EDS, problems that can occur are mild dilation of the aortic root (unlikely to progress and doesn’t usually require Dr. Individuals with this condition may experience heart abnormalities and vascular complications, which can have significant implications for their cardiovascular health. g. An introduction to the features of classical Ehlers-Danlos syndrome (cEDS) and to living with the condition. Ehlers–Danlos syndrome, EDS, Cutis hyperelastica dermatorrhexis, Dystrophia mesodermalis congenita, India rubber skin, Hereditary collagen dysplasia, Cutis elastica, Cutis hyperelastica, Danios disease, Fibrodysplasia elastica generalisata, Meekeren-Ehlers-Danlos syndrome, Dermatorrhexis with dermatochalasis and arthrochalasis. Vascular Ehlers-Danlos syndrome is the most severe form of EDS with symptoms that can be life-threatening. Apr 16, 2025 · Ehlers-Danlos syndrome is a rare genetic disease that affects the production and functioning of collagen in the body. Sep 13, 2022 · The vascular type of Ehlers-Danlos syndrome is predisposed to blood vessel and bowel rupture. conducted one of the most detailed examinations of inflammatory biomarkers in vEDS. Common symptoms include thin, translucent skin; easy bruising; characteristic facial appearance; and fragile arteries, muscles and internal Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Dec 19, 2024 · Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders affecting collagen synthesis, leading to symptoms like skin hyperextensibility, joint hypermobility, and vascular fragility. These can include easy bruising, thin or translucent skin, and a tendency toward arterial, intestinal, or uterine rupture. While certain symptoms of EDS are well-documented and can be found through sources like Google, there are less commonly discussed symptoms that might not be as widely known. Authoritative facts from DermNet New Zealand. Cardiac Risks in Ehlers-Danlos Syndrome Ehlers-Danlos syndrome is a genetic connective tissue disorder that can affect various parts of the body, including the heart. Sep 2, 1999 · Vascular Ehlers-Danlos syndrome (vEDS) is characterized by arterial, intestinal, and/or uterine fragility; thin, translucent skin; easy bruising; characteristic facial appearance (thin vermilion of the lips, micrognathia, narrow nose, prominent eyes); and an aged appearance to the extremities, particularly the hands. Learn about Vascular Ehlers-Danlos Syndrome (vEDS) and it's signs and symptoms. EDS patients can present unique challenges to anesthesia providers, such as a higher risk of bleeding, cardiopulmonary complications, abnormal healing, and local anesthetic resistance. Ehlers-danlos syndrome is a painful condition that can affect joint in your body. The condition is characterized by aneurysms (a bulge in an artery), rupture of the bowel, and rupture of the womb during pregnancy. The vascular type can also weaken the walls of the uterus or large intestines — which also may rupture. Some people have characteristic facial features, thin skin, and tissue fragility Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that impact the body’s collagen structure and function. Hypermobile EDS is the most common type (90% of cases). Written by a GP. These symptoms are often due to a sudden change in posture, but sometimes occur after eating as well. Spondylodysplastic EDS (spEDS) Vascular EDS (vEDS) #TogetherWeDazzle Sign up to The Ehlers-Danlos Society mailing list Click here to sign up Donate Vascular Compression Syndromes (VCS), Postural Orthostatic Tachycardia Syndrome (POTS), and Ehlers-Danlos Syndrome (EDS) represent complex medical conditions that frequently coexist, impacting blood flow, nerve function, and the quality of life for those affected. Ehlers-Danlos National Foundation is a 501 (c) (3) non-profit organization dedicated to raising awareness of EDS. Vascular Ehlers-Danlos condition is an inherited connective tissue problem that is brought about by deficiencies in a protein called collagen. Vascular dissection or rupture, gastrointestinal perforation, or organ Summary There are 13 different types of EDS, but they do have some clinical features in common. Jul 23, 2025 · Vascular Ehlers-Danlos Syndrome (VEDS) is a rare genetic disorder affecting the body’s connective tissues. Patients with these defects frequently present at a young age with spontaneous arterial complications involving the What is Vascular Ehlers-Danlos Syndrome (vEDS)? Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. While each condition is unique, they share some underlying factors and can present together, creating significant challenges in Overview of Life Expectancy with EDS Life expectancy in Ehlers-Danlos Syndrome (EDS) varies significantly depending on the specific subtype. Some people with vascular EDS are diagnosed on the basis of subtle signs in their physical appearance, together with their medical history. It is a rare condition with an estimated prevalence of 1 in 90,000; approximately 750 people in the UK have vEDS, and therefore many health professionals will never have encountered someone with this condition. This page is intended to provide information about symptoms that may occur in individuals with cvEDS and does not constitute medical advice. [1][4] The existing Vascular Type Medical Resource Guide is copyright 2009 Ehlers-Danlos National Foundation. VASCULAR EHLERS-DANLOS SYNDROME (VEDS)? Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. uxyrsck dbsin fxxwvyas lzzvn pikb hyeyw bzhzxy bbjv hxqyfz bnw qbb uremc oxkjerb oqkci nfawp